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A qualitative exploration of the unique challenges facing older men with haemophilia and the implications for social work practice


 
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1. Title Title of document A qualitative exploration of the unique challenges facing older men with haemophilia and the implications for social work practice
 
2. Creator Author's name, affiliation, country Sarah Eleanor Elliott; University of Auckland; New Zealand
 
2. Creator Author's name, affiliation, country Kelsey L Deane; University of Auckland; New Zealand
 
2. Creator Author's name, affiliation, country Barbara Staniforth; University of Auckland; New Zealand
 
3. Subject Discipline(s)
 
3. Subject Keyword(s) Keywords: Haemophilia; ageing; social work; wellbeing
 
4. Description Abstract

INTRODUCTION: For the first time, people who have haemophilia are facing the same aging issues as the general population, adding further complexity to their care and treatment. Worldwide, there has been little research on the psychosocial effects of growing older with haemophilia. This study investigated the holistic experiences of older men with haemophilia in Aotearoa New Zealand. Support services, particularly the roles that social workers could play in facilitating wellbeing, have also been explored.

METHODS: A focus group was conducted with a purposive sample of five older men living with haemophilia in Aotearoa New Zealand. Thematic analysis through Braun and Clarke’s six-phased model (2006) was used to provide insight into their experiences.

FINDINGS: Substantial physical and new medical challenges existed for the participants and these had flow-on effects for their psychosocial wellbeing. Existing services were well regarded but the anticipated complexity of multi-specialists and continuing care provoked anxiety. Connection with others with similar challenges was seen as an important social resource.  

CONCLUSIONS: The complexities associated with an aging population of people with haemophilia has generated a need for a wide-range of services and supports. Social workers need to take new and different approaches to fill the roles of advocating for, educating and providing support to, older men with haemophilia.  

 
5. Publisher Organizing agency, location ANZASW
 
6. Contributor Sponsor(s) Kelsey L. Deane, University of Auckland; Barbara Staniforth , University of Auckland; Haemophilia Foundation of New Zealand
 
7. Date (YYYY-MM-DD) 2017-07-26
 
8. Type Status & genre Peer-reviewed Article
 
8. Type Type Qualitative
 
9. Format File format PDF
 
10. Identifier Uniform Resource Identifier https://anzswjournal.nz/anzsw/article/view/239
 
10. Identifier Digital Object Identifier (DOI) http://dx.doi.org/10.11157/anzswj-vol29iss2id239
 
11. Source Title; vol., no. (year) Aotearoa New Zealand Social Work; Vol 29, No 2 (2017): Special issue
 
12. Language English=en en
 
13. Relation Supp. Files
 
14. Coverage Geo-spatial location, chronological period, research sample (gender, age, etc.)
 
15. Rights Copyright and permissions Copyright (c) 2017 Aotearoa New Zealand Association of Social Workers
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This work is licensed under a Creative Commons Attribution 4.0 International License.