Caring for children with disabilities in a foreign land: Experiences and perceptions of a group of Korean parents and professionals

Authors

  • Clara Choi
  • Hong-Jae Park
  • Michael O'Brien

DOI:

https://doi.org/10.11157/anzswj-vol29iss4id398

Keywords:

Children, disabilities, culture, parents of children with disabilities, migrant parents, Korean

Abstract

INTRODUCTION: This article aims to provide an overview of the experiences of Korean immigrant parents raising children with disabilities in Aotearoa New Zealand, primarily focusing on their experience of disability services and systems.

METHODS: As the present exploratory study aimed to gain a deeper understanding of immigrant parents’ experiences and perceptions, a qualitative approach was employed to collect rich and lived information from participants. Ten participants were recruited and interviewed among Korean parents of children with disabilities and professionals working with those families.

FINDINGS: Lack of trust among Korean parents living in Aotearoa New Zealand was frequently discussed by the participants in the present study. Lack of information around available services and alternative support and cultural barriers were often identified to have a significant impact on Korean parents’ experiences with services. A sense of obligation to integrate into the host society and the services provided was also evident. Further, there was a contradictory perception between parents and associated professionals in relation to services’ expectations of Korean parents.

 CONCLUSIONS: From analysis of the findings, three main themes emerged: experiences of services and its relations with trust, cultural values and expectations, and looking to the future. The study suggests that there is a need for professionals, service providers and government to consider ways to build trusting relationships with Korean parents and their children with disabilities, and makes a number of recommendations. 

 

References

Bailey, D. B., Skinner, D., Rodriguez, P., Gut, D., & Correa, V. (1999). Awareness, use, and satisfaction with services for Latino parents of young children with disabilities. Exceptional Children, 65(3), 367–389.

Bywaters, P., Ali, Z., Fazil, Q., & Wallace, L. M. (2003). Attitudes towards disability amongst Pakistani and Bangladeshi parents of disabled children in the UK: Considerations for service providers and the disability movement. Health and Social Care in the Community, 11(6), 502–509. doi:10.1046/j.1365-2524.2003.00456.x

Cho, S., Singer, G., & Brenner, M. (2000). Adaptation and accommodation to young children with disabilities: A comparison of Korean and Korean American parents. Topics in Early Childhood Special Education, 20, 236–249. doi: 10.1177/027112140002000404

Fatimilehin, I. A., & Nadirshaw, Z. (1994). A cross-cultural study of parental attitudes and beliefs about learning disability (mental handicap). Mental Handicap Research, 7, 202–227. doi:10.1111/j.1468-3148.1994.tb00127.x

Hatton, C., Azmi, S., Caine, A., & Emerson, E. (1998). Informal carers of adolescents and adults with learning difficulties from the South Asian communities: Family circumstances, service support and carer stress. British Journal of Social Work, 28, 821–837.

Holroyd, E. E. (2003). Chinese cultural influences on parental caregiving obligations toward children with disabilities. Qualitative Health Research, 13, 4–19.

Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288. doi:10.1177/1049732305276687

Hyun, K. J. (2001). Socio-cultural change and traditional values: Confucian values among Koreans and Korean Americans. International Journal of Intercultural Relations, 25(2), 203–229. doi:10.1016/S0147-1767(01)00009-8

Khanlou, N., Haque, N., Sheehan, S., & Jones, G. (2015). “It is an issue of not knowing where to go”: Service providers’ perspectives on challenges in accessing social support and services by immigrant mothers of children with disabilities. Journal of Immigrant and Minority Health, 17(6), 1840–1847.

King, G., Desmarais, C., Lindsay, S., Piérart, G., & Tétreault, S. (2015). The roles of effective communication and client engagement in delivering culturally sensitive care to immigrant parents of children with disabilities. Disability and Rehabilitation, 37(15), 1372–1381.

Kim, B. S. K., Atkinson, D. R., & Yang, P. H. (1999). The Asian Values Scale: Development, factor analysis, validation, and reliability. Journal of Counseling Psychology, 46, 342-352. Washington, D.C.: American Psychological Association.

Kim-Rupnow, W. (2005). Disability and Korean culture. In J. Stone (Eds.), Culture and disability: Providing culturally competent services (pp. 113–138). Thousand Oaks, CA: Sage Publications.

Lee, K. T. (1983). The structure of Korean consciousness, Korean series (1). [in Korean language]. Seoul, Korea: Sinwon Moonwhasa.

Lindsay, S., Tétrault, S., Desmaris, C., King, G., & Piérart, G. (2014). Social workers as “cultural brokers” in providing culturally sensitive care to immigrant families raising a child with a physical disability. Health & Social Work, 39(2), 10–20.

Monette, D. R., Sullivan, T. J., & DeJong, C. R. (2008). Applied social research: A tool for the human services (7th ed.). Belmont, CA: Thomson/Wadsworth.

Park, I., & Cho, L. (1995). Confucianism and the Korean family. [Special issue: Families in Asia: Beliefs and realities]. Journal of Comparative Family Studies, 26(1), 117–134.

Park, H., & Chung, G. H. (2014). A multifaceted model of changes and adaptation among Korean mothers of children with disabilities. Journal of Child and Family Studies, 24(4), 915–929.

Shin, J. Y. (2002). Social support for families of children with mental retardation: Comparison between Korea and the United States. Mental Retardation, 40, 103–118.

Statistics New Zealand. (2006). New Zealand census of population and dwellings. Wellington, New Zealand: Author. Retrieved from http://m.stats.govt.nz/Census/2013-census.aspx>

Vickers, M. H. (2006). Caring and working as work-home conflict. In M. H. Vickers (Ed.), Working and caring for a child with chronic illness: Disconnected and doing it all (pp. 15–33). New York, NY: Palgrave Macmillan.

Welterlin, A., & LaRue, R. H. (2007). Serving the needs of immigrant families of children with autism. Disability & Society, 22(7), 747–760. doi:10.1080/09687590701659600

Wong, S. Y., Wong, K. S., Martinson, I., Lai, A. C., Chen, W. J., & He, Y. S. (2004). Needs of Chinese parents of children with developmental disability. Journal of Learning Disabilities, 8(2), 141–158. doi:10.1177/1469004704042703

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Published

2017-12-02

How to Cite

Choi, C., Park, H.-J., & O'Brien, M. (2017). Caring for children with disabilities in a foreign land: Experiences and perceptions of a group of Korean parents and professionals. Aotearoa New Zealand Social Work, 29(4), 61–73. https://doi.org/10.11157/anzswj-vol29iss4id398

Issue

Vol. 29 No. 4 (2017)

Section

Original Articles

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