A review of adults with disabilities transitioning from their family home to community settings
DOI:
https://doi.org/10.11157/anzswj-vol29iss1id217Keywords:
disability, adult disability, independent living,Abstract
INTRODUCTION: This study examined the experiences of adults with disabilities (AWDs) transitioning to community based residential settings. This field of study has not been sufficiently researched despite being a key aspect of adulthood.
METHOD: A literature review of articles relating to residential transitions for AWDs was undertaken.
FINDINGS: The literature review findings could be grouped around three main categories: AWDs’ perception and self-determination, caregivers’ perceptions of the process and, lastly, the insights from service providers and social policies. The review and feedback identified issues experienced during the residential transition, such as feelings of readiness to transit which relate closely to the person’s self-determination. As the study delved deeper into the residential transition process in Aotearoa New Zealand, AWDs are noted to be vulnerable persons always requiring support in order to develop and maintain their independence.
IMPLICATIONS: Substantive state recognition, such as a social compact, is the key groundwork for this marginalised group to develop self-efficacy, have successful transition experiences and sustain good lives. Eventually, this must be in the form of Crown-binding legislation, where vulnerable adults are served through restorative and protective policies.
References
Bank-Mikkelsen, N. (1969). A metropolitan area in Denmark: Copenhagen. In R. Kugel & W. Wolfensberger (Eds.), Changing residential patterns for the mentally retarded (pp. 363–376). Washington DC: President’s Committee on Mental Retardation.
Berry, J. O. (1995). Families and deinstitutionalization: An application of Bronfenbrenner’s social ecology model. Journal of Counseling and Development, 73(4), 379–383. Retrieved from http://search.proquest.com.ezproxy.waikato.ac.nz/docview/229806036?pq-origsite=summon
Brisenden, S. (1986). Independent living and the medical model of disability. Disability, Handicap & Society, 1(2), 173–178. doi.org/10.1080/02674648666780171
Bronfenbrenner, U. (1992). Ecological systems theory. In Vasta, R. (Ed.) Six theories of child development: Revised formulations and current issues (pp. 187–249). London, England: Jessica Kingsley Publishers.
Bronfenbrenner, U., & Morris, P. A. (2007). The bioecological model of human development. In Damon, R & Lerner, W.M. (Eds. ) Handbook of child psychology. John Wiley & Sons, Inc. Retrieved from http://onlinelibrary.wiley.com/doi/10.1002/9780470147658.chpsy0114/abstract
Clegg, J., Murphy, E., & Almack, K. (2010). Transition: A moment of change. In Grant, G., Ramcharan, P. Flynn, M., & M.Richardson, M. (Eds.) Learning disability: A life cycle approach (pp. 203–216). UK: McGraw-Hill Education (UK).
Davis, L. (2014). The end of normal: Identity in a Biocultural Era. Ann Arbor: University of Michigan Press.
Department of Justice. (2010). 2010 ADA regulations. Retrieved from http://www.ada.gov/2010_regs.htm
Drew, C. J., & Hardman, M. L. (2000). Chapter 10: The adult with mental retardation. In Hardman, M.L. Ed., Mental retardation: A life cycle approach (7th ed., pp. 292–320). Upper Saddle River, NJ: Prentice Hall.
Emerson, E. (2005, September 28). Adults with learning difficulties in England 2003/04 [Publication]. Retrieved from http://webarchive.nationalarchives.gov.uk/20130107105354/http:/www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsStatistics/DH_4120033
Forrester-Jones, R., Carpenter, J., Coolen-Schrijner, P., Cambridge, P., Tate, A., Beecham, J., … Wooff, D. (2006). The social networks of people with intellectual disability living in the community 12 years after resettlement from long-stay hospitals. Journal of Applied Research in Intellectual Disabilities, 19(4), 285–295. http://doi.org/10.1111/j.1468-3148.2006.00263.x
Grey, J. M., Griffith, G. M., Totsika, V., & Hastings, R. P. (2015). Families’ experiences of seeking out-of-home accommodation for their adult child with an intellectual disability. Journal of Policy and Practice in Intellectual Disabilities, 12(1), 47–57. http://doi.org/10.1111/jppi.12106
Hendricks, D. R., & Wehman, P. (2009). Transition from school to adulthood for youth with autism spectrum disorders: Review and recommendations. Focus on Autism and Other Developmental Disabilities, 24(2), 77–88.
Henninger, N. A., & Taylor, J. L. (2014). Family perspectives on a successful transition to adulthood for individuals with disabilities. Intellectual and Developmental Disabilities, 52(2), 98–111.
Janus, A. L. (2009). Disability and the transition to adulthood. Social Forces, 88(1), 99–120. doi://doi.org/10.1353/sof.0.0248
Jokinen, N. S., Janicki, M. P., Hogan, M., & Force, L. T. (2012). The middle years and beyond: Transitions and families of adults with Down syndrome. Journal on Developmental Disabilities, 18(2), 59–69. Retrieved from http://oadd.org/journal/volume-18-number-2-special-joint-issue-ijds-volume-1-number-1/
Kielland, C. B. (2010). Deinstitutionalisation in Norway: The process, challenges and solutions. Tizard Learning Disability Review, 15(4), 15–21.
Leiter, V., & Waugh, A. (2009). Moving out: Residential independence among young adults with disabilities and the role of families. Marriage & Family Review, 45(5), 519–537. doi://doi.org/10.1080/01494920903050847
Marston, G., & McDonald, C. (2006). Analysing social policy: A governmental approach. Cheltenham, UK: Edward Elgar Publishing.
Ministry of Social Development. (2015). NZ disability strategy. Office for Disability Issues. Wellington, NZ. Retrieved from http://www.odi.govt.nz/nzds/
New Zealand Parliamentary Counsel Office. (1975). Disabled Persons Community Welfare Act 1975 No 122 (as at 3 March 2010), Public Act Contents – New Zealand Legislation. Retrieved from http://www.legislation.govt.nz/act/public/1975/0122/latest/DLM436790.html
New Zealand Parliamentary Counsel Office. (1989). Children, Young Persons, and Their Families Act 1989 No 24 (as at 6 December 2014), Public Act Contents – New Zealand Legislation. Retrieved from http://www.legislation.govt.nz/act/public/
/0024/latest/DLM147088.html#DLM150001
New Zealand Parliamentary Counsel Office. (2000). New Zealand Public Health and Disability Act 2000 No 91 (as at 30 June 2015), Public Act Contents – New Zealand Legislation. Retrieved from http://www.legislation.govt.nz/act/public/2000/0091/latest/DLM80051.html
New Zealand Parliamentary Counsel Office. (2001). Health and Disability Services (Safety) Act 2001 No 93 (as at 5 August 2013), Public Act Contents – New Zealand Legislation. Retrieved from http://www.legislation.govt.nz/act/public/2001/0093/latest/DLM119975.html
New Zealand Parliamentary Counsel Office. (2014). Vulnerable Children Act 2014 No 40 (as at 01 July 2015), Public Act 5 Interpretation – New Zealand Legislation. Retrieved from http://www.legislation.govt.nz/act/public/2014/0040/latest/DLM5501627.html
Nirje, B. (1969). The normalization principle and its human management implications. In R. Kugel & W. Wolfensberger (Eds.), Changing residential patterns for the mentally retarded (pp. 363–376). Washington, DC: President’s Committee on Mental Retardation.
Nirje, B. (1985). The basis and logic of the normalization principle. Australia and New Zealand Journal of Developmental Disabilities, 11(2), 65–68. doi://doi.org/10.3109/13668258509008747
Oliver, M. (1990). The politics of disablement: A sociological approach. In Oliver, M. (Ed) The politics of disablement: A sociological approach (pp. 7–8). London, UK: Palgrave Macmillan.
Oliver, M. (2013). The social model of disability: Thirty years on. Disability & Society, 28(7), 1024–1026. doi://doi.org/10.1080/09687599.2013.818773
Owens, J. (2015). Exploring the critiques of the social model of disability: The transformative possibility of Arendt’s notion of power. Sociology of Health & Illness, 37(3), 385–403. http://doi.org/10.1111/1467-9566.12199
Pallisera, M., Vilà, M., & Fullana, J. (2014). Transition to adulthood for young people with intellectual disability: Exploring transition partnerships from the point of view of professionals in school and postschool services. Journal of Intellectual and Developmental Disability, 39(4), 333–341. http://doi.org/10.3109/13668250.2014.938032
Palmer, S. B. (2010). Self-determination: A life-span perspective. Focus on Exceptional Children, 42(6), 1–16.
Schlossberg, N. K. (1995). The transition framework. In M. Anderson, J. Goodman, & N. K. Schlossberg (Eds.), Counseling adults in transition: Linking practice with theory (p. 28). Springer Publishing. Retrieved from https://books.google.co.nz/books?id=BCobGX6ofOMC
Shakespeare, T. (1999). “Losing the plot”? Medical and activist discourses of contemporary genetics and disability. Sociology of Health & Illness, 21(5), 669–688. doi://doi.org/10.1111/1467-9566.00178
Shakespeare, T. (2013). Facing up to disability. Community Eye Health Journal, 26(81), 1–3.
Shakespeare, T., & Watson, N. (2001). The social model of disability: An outdated ideology? In S. Barnett & B. Altman (Eds.), Exploring theories and expanding methodologies: Where we are and where we need to go (Vol. 2, pp. 9–28). Emerald Group. Retrieved from http://www.emeraldinsight.com/doi/abs/10.1016/S1479-3547(01)80018-X
Stewart, C., Gates, S., Milner, P., Mirfin-Veitch, B., & Schumayer, D. (2008). An examination of the outcome of the resettlement of residents from the Kimberley Centre. The Donald Beasley Institute. Retrieved from http://www.health.govt.nz/publication/examination-outcome-resettlement-residents-kimberley-centre
Vehmas, S., & Shakespeare, T. (2014). Disability, harm, and the origins of limited opportunities. Cambridge Quarterly of Healthcare Ethics, 23(1), 41–7.
Weinbach, H. (2009). Commentary on “deinstitutionalisation and community living for people with intellectual disabilities in Austria”. Tizard Learning Disability Review, 14(1),14–17)
Werner, S. (2015). Public stigma and the perception of rights: Differences between intellectual and physical disabilities. Research in Developmental Disabilities, 38, 262–271. doi://doi.org/10.1016/j.ridd.2014.12.030
World Health Organisation. (2015). WHO | Disabilities. Retrieved from http://www.who.int/topics/disabilities/en |
Winn, S., & Hay, I. (2009). Transition from school for youths with a disability: Issues and challenges. Disability & Society, 24(1), 103–115. doi://doi.org/10.1080/09687590802535725
Wolfensberger, W. (1977). The normalization principle and some major implications to architectural-environmental design. In M.J Bednar (Ed). Barrier free environments. (2nd, pp.135-166) Stroudsburg: Dowden, Hutchinson & Ross.
Wolfensberger, W. (1983). Social role valorization: A proposed new term for the principle of normalization. Mental Retardation, 21(6), 234–239.
Downloads
Published
How to Cite
Issue
Section
License
Authors who publish with this journal agree to the following terms:
By completing the online submission process, you confirm you accept this agreement. The following is the entire agreement between you and the Aotearoa New Zealand Association of Social Workers (ANZASW) and it may be modified only in writing.
You and any co-authors
If you are completing this agreement on behalf of co-authors, you confirm that you are acting on their behalf with their knowledge.
First publication
By submitting the work you are:
- granting the ANZASW the right of first publication of this work;
- confirming that the work is original; and
- confirming that the work has not been published in any other form.
Once published, you are free to use the final, accepted version in any way, as outlined below under Copyright.
Copyright
You assign copyright in the final, accepted version of your article to the ANZASW. You and any co-authors of the article retain the right to be identified as authors of the work.
The ANZASW will publish the final, accepted manuscript under a Creative Commons Attribution licence (CC BY 4.0). This licence allows anyone – including you – to share, copy, distribute, transmit, adapt and make commercial use of the work without needing additional permission, provided appropriate attribution is made to the original author or source.
A human-readable summary of the licence is available from http://creativecommons.org/licenses/by/4.0, which includes a link to the full licence text.
Under this licence you can use the final, published version of the article freely – such as depositing a copy in your institutional research repository, uploading a copy to your profile on an academic networking site or including it in a different publication, such as a collection of articles on a topic or in conference proceedings – provided that original publication in Aotearoa New Zealand Social Work is acknowledged.
This agreement has no effect on any pre-publication versions or elements, which remain entirely yours, and to which we claim no right.
Reviewers hold copyright in their own comments and should not be further copied in any way without their permission.
The copyright of others
If your article includes the copyright material of others (e.g. graphs, diagrams etc.), you confirm that your use either:
- falls within the limits of fair dealing for the purposes of criticism and review or fair use; OR
- that you have gained permission from the rights holder for publication in an open access journal.